Identity data:
Civil status (full date of birth, family name, maiden name, first names, sex, place of birth), residential address.
Health data:
Medical history and clinical risk factors at inclusion, parents’ country of birth to determine geographic origin, medical consultations and procedures, history of kidney disease, kidney ultrasound, hospitalizations and interventions, biological tests, medical imaging, transfusions, vaccinations, medications, clinical and anthropometric measurements such as height, weight, and blood pressure, cognitive testing, management of chronic kidney disease, preparation for renal replacement therapy, dialysis access type, women’s reproductive health, sleep questionnaire.
Socio-professional data:
Marital status, household composition, number of children, living environment, socio-professional category, education level, employment status, income bracket, past and present professional career.
Behavioral data:
Tobacco and alcohol consumption, physical activity questionnaire.
Quality of life data:
Quality of life questionnaires, psychometric scales, activities of daily living, relationships with family and social environment, satisfaction with care.
Dietary data:
Consumption of fruits, vegetables, cereals, sugar, meat, fish, dairy products, etc.
Biological and molecular data:
Biological and genetic markers established from samples stored in the biobank.
Vital status
Kidney health data:
Date and location of dialysis and/or kidney transplantation.
National Health Data System (SNDS):
Health care expenses and reimbursements (outpatient care, hospital care, and associated amounts), including outpatient care consumption (consultations, technical acts, etc.), prescriptions for medications and medical devices, transportation, hospital stays and diagnoses; daily allowances and disability benefits; long-term illnesses (ALD); health coverage; information on date and medical causes of death; treating physician and other health professionals.
